FrontPoint Systems Ltd

Well over a year after I raised concerns about the National Care Record Guarantee, the Guardian finally has picked up a story about the Spine & the lack of meaningful safeguards. This is what happens when you staff the design committee with people who do not understand the technology they are working with.
My previous story can be found here.

What should you do if you are concerned? (credits to the Guardian)
If you are concerned, you should discuss it with your GP. You can put a block on your own data by writing to:

I require you not to begin processing my sensitive personal data to the proposed NHS Summary Care Record on the Spine. It is likely to cause me substantial unwarranted distress because:

1. No ’sealed envelopes’ yet exist to limit access

2. No online patient system yet exists to correct errors

3. Data uploaded may include genetic, psychological or sexual information

4. It is intended to make my data available to social workers, researchers and commercial firms

5. My consent will not be asked before beginning processing

6. Adequate criminal penalties against abuse do not yet exist

7. Police and other agencies can gain access to a potentially unlimited range of information about me. There is abundant evidence that computer databases - including police, vehicle licensing and banking computers - are routinely penetrated by private investigators on behalf of clients, including media organisations

8. 250,000 smart cards have been issued granting access to the Spine

9. The department threatens to withhold appropriate medical care to objectors

10. Doctors say there is no necessity to design the Spine in this way

For these reasons, among others, I strongly fear that I am in danger of having false or damaging health information fall into the wrong hands. My privacy is being unnecessarily violated.

Yours faithfully

Share This